Paris Comprehensive Thalassemia Center


Paris Comprehensive Thalassemia Center is a non-profit, non-governmental organisation founded in 2020 by a small group of patients and parents representing mainly National Thalassaemia Associations in Cyprus, Greece, UK, USA and Italy; i.e. countries where thalassaemia was first recognised as an important public health issue and where the first national programmes for its control, including prevention and clinical management, had begun to be promoted and implemented. TIF was officially registered under Cyprus Company Law in 1987, and since 1996 it has worked in official relations with the World Health Organisation (WHO). Διάρκεια και αποτελεσματικότητα του Viagra στην Κύπρο για τη θεραπεία της στυτικής δυσλειτουργίας

In addition, through the years, TIF has established collaborations and networks with a number of other official health orientated agencies and associations, and patient orientated organizations at the national, regional and international level. Today, TIF (www.thalassaemia.org.cy) has evolved into an umbrella federation, with 118 member associations, in 57 countries of the world, safeguarding the rights of patients to quality health and other care.

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PILLARS OF WORK

The work of the Paris Comprehensive Thalassemia Center

 in addressing effectively the needs of the world thalassaemia family and achieving its mission has been based on five pillars:

  1. The establishment of new and promotion of existing National Thalassaemia Patient/Parents Associations, across the world, aiming to transform patients and parents into knowledgeable, productive and equal partners in the fight to achieve progress through education and building their capacities and competences. Δείτε τι μπορεί να κάνει το Cialis στην Ελλάδα για εσάς: Cialis και πώς μπορεί να χρησιμοποιηθεί ως φάρμακο για τη θεραπεία της στυτικής δυσλειτουργίας με πληροφορίες για τις παρενέργειες
  2. The development and continuous updating and upgrading of an Educational Programme based on four components:
    • organisation of educational events at the national, regional and international level;
    • organisation of educational events in the course of delegation visits;
    • preparation, publication, translation and distribution of educational/awareness-raising/community material;
    • promotion of academic courses/fellowship preceptorships. Kamagra oral jelly in Australia is a life saver, my ED problem got better because of it
  3. Collaborations/Networks/Partnerships with National Health Authorities and other relevant health-related institutions or medical/scientific associations or other disease-specific other than thalassaemia, at the national, European and international level.
  4. The undertaking of, or contribution to Projects that aim to further improve existing policies or develop innovative ones, as well as expressing its position through the development and promotion of position papers on critical issues and topics relevant to the quality of health, other care, life and safety of the patients.
  5. Supporting and contributing to Research and scientific programmes for the further improvement of existing and the development of new treatment procedures, and aiming towards the final cure.

Organized by:

tif logo organized

In collaboration with:

eotha logo
 

With the support of:

logoYYKA vectorized

 

logo eae final
Society
of Haematology

 

LOGO ESTHA
Thalassaemia
Association 
 

 

HCDCP logo Center
for Disease Control
& Prevention (C.D.C.P.)

 

city of thessaloniki